LLN About Us

In 1993, the Lighthouse Lymphedema Network held its first meeting in the home of its founder, Joan White. Those present included patients, family members, one occupational therapist, and one massage therapist. The occupational therapist and massage therapist would go on to get their certifications in treatment of lymphedema patients.

From the beginning, the group was focused on education and creating awareness. The members were definitely “pioneers.”  In 1993, the internet was still in its infancy. Providing information to the public about lymphedema presented many challenges. One of the first of its kind, the LLN became one of the most respected lymphedema support groups in the country through word of mouth, determination and excellent programs serving patients and professionals alike.

The LLN has a strong board of directors, which meets quarterly and administers the many projects and programs of the organization.

  • Education & Awareness Programs: Over the years, with the help of various businesses and lymphedema product companies, the LLN has sponsored programs on lymphedema and other lymphatic diseases. We are proud of our efforts in our “Shedding Light on Lymphedema” programs and our many State of Georgia Lymphedema Education & Awareness events.
  • Through the efforts of the LLN, October 22nd has been declared the State of Georgia Lymphedema Awareness Day. This day has been celebrated with distinguished speakers presenting on various topics from the correct treatment of lymphedema to current research. We especially thank the physicians, certified therapists, and technicians who have shared their time and talents over the years to make our education and awareness programs among of the best in the country.
  • The LLN sponsors various events and an annual conference throughout the year and invites speakers to discuss subjects of interest for our patients, family members, and the professional community.
  • The LLN publishes quarterly newsletters, provides information brochures, and participates in many health fairs throughout the year.
  • Website: Information on the LLN and about lymphedema is available. We also provide direct links to many other sites that we know are trustworthy.
  •  The Bandages and Garment Fund Fund provides individuals with lymphedema who do not have insurance coverage for the necessary compression supplies required for treatment and maintenance. It is extremely important that once an individual has gone through a lymphedema treatment program, they have proper compression garments for the area affected by lymphedema. Through donations, fund raisers, and grants, the organization has provided assistance to hundreds of patients.

The LLN is a group of volunteers (we have no paid staff) whose purpose is to educate and create awareness about lymphedema and to help patients, family members, and professionals.

The LLN welcomes members to become involved in helping us to achieve our goals.

Become Active! Become an Advocate! Become an LLN contributor by serving on one of our many committees! You can make a difference!

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About Us

The Lighthouse Lymphedema Network is a 501 (C) (3) organization of individuals who are lymphedema patients, or who have an interest in lymphedema.
5290 Matt Hwy
Suite 502-135
Cumming, GA  30028

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